A unhappy Wednesday 04/14/10

I received an email from a friend who was the very first CD we helped come out, he was here on a conference staying at Harras, he no longer dresses.

Over the last couple years he has been posting that he has had some pain in his legs and has been to numerous doctors in an attempt to find out the cause, he even had a couple of vertebra fused in his lower back. All miss diagnoses. It turns out, he found out last week that he has an incurable disease called (don't laugh) Stiff man syndrome, you can google it. It's very rare and one of the most painful conditions you can imagine.

I wanted to see him again due to it being almost 5 years since we last met. I picked him up, he was struggling to walk with his cane, his voice was so strained he sounded 90 years old and he's only 40. I took him to Good Fellows a nearby restaurant where they have Karaoke, we both had hamburgers but he could hardly hold his sandwich, his finger tips actually turned blue in front of me. He was in so much pain we only spent about an hour together before I took him back to the casino hotel.

He is British and kept the traditional "stiff upper lip". I think this may be the last time I see my old friend, I cried thinking of this highly intelligent, beautiful en-femme and male person I knew and at how he has degenerated into this unfortunate state.

My dear friend David, my heart, prayers and best wishes go out to you with the hope you don't suffer long from this tragic condition.

Affectionately, Louise